A family's fight for the drugs they say can change their children's lives

773 views · Published 22 February 2018 · 2:20 · Indexed 21 September 2026

Channel: 5 News · 2018 · News & Politics

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The parents of children with a rare genetic condition say they're 'completely devastated' that the NHS is refusing to fund a drug which they say, can change their lives. Seven-year-old Ollie and four-year-old Amelia Caroll are unlikely to live past the age of 12. While there's no cure, over the last year, a new drugs trial has made a huge difference to them - and the family had hoped the health service would approve it. 

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