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Peanut Desensitization Study Unblinding - Peanut Allergic Boy Eats Peanut - No Reaction!

4,462 views · Published 8 June 2017 · 2:57 · Indexed 23 October 2026

Channel: Mommy2TwoBoys · 2017 · People & Blogs

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DISCLAIMER: I am NOT a recruiter for medical studies. I am NOT advertising this as a cure. I am sharing OUR experience only. This may not work at all for you or your results may not be the same as we experienced, results may vary. This is NOT FDA approved and is an ongoing study. However, PPOIT (Private Practice Oral Immunotherapy) IS CURRENTLY an option available for desensitization treatment for peanut and other allergens and there have been great results. Had there been a doctor close enough to our location, this is a route we would have pursued years ago!
Click here to find a doctor near you and learn more to see if it's an option for you/your family: http://www.oit101.org
You can join the related Facebook groups as well:
Private Practice OIT: 
https://www.facebook.com/groups/PrivatePracticeOIT/
OIT 101:
https://www.facebook.com/groups/OIT101/ 


READ THE DESCRIPTION BELOW TO LEARN MORE!
If you are in the AIMMUNE PALISADE Trial... let us know. We belong to a private support group and it's only for people in the trial. If you have any questions about our experience... ask and we will try to answer them all... or if you have a comment... please leave it as well. Feel free to share the video! :) Here is more information on the study: http://www.aimmune.com/clinical-trials/ar101-for-peanut-allergy/ 

OUR EXPERIENCE/JOURNEY/STORY:
Last year, Jayden was excited to be considered to participate in the Aimmune PALISADE Trial. This Phase 3 Trial's purpose is to desensitize those allergic to peanut... enough to be "Bite Proof". Bite Proof means that if you were accidentally exposed to your allergen, in this case it's peanut, you wouldn't have such a severe allergic reaction. Well, my son started this trial about a year ago. The initial food challenge resulted in him suffering anaphylaxis at 1mg of peanut. He was given epinephrine and it reversed the reaction nearly instantly. 1mg is approximately 1/300th of a peanut. That is SO tiny. My son is highly allergic. At the initial escalation, my son tolerated the required 3mg to participate in the study. Naturally, since he suffered anaphylaxis at 1mg during the food challenge, I assumed (which we were told not to guess whether we were on placebo or AR101) we were in the placebo group. For the next half a year, my son regularly updosed from 3mg to 300mg and then maintained a daily dose of 300mg for the other half a year. At the end of the year, we did the double blind food challenge again and my son tolerated, on day 1, 1000mg of peanut flour! Day 2, which is today: Wednesday - June 7, 2017... was the placebo and the day we were unblinded... or, the day they tell us if we were receiving the placebo or real drug and what day was real peanut for the food challenge. Watch as my son learns what he was on and see our total surprise! 

My son tolerated 1,000mg of peanut flour! 2,044mg cumulative!! He had ZERO reaction... none!! No anaphylaxis. No hives. No vomiting. No salivation. No throat closing. No loss of consciousness. All things he experienced in the past with his reactions! 1,000mg is approximately equal to 4 peanuts. 2,044mg is approximately equal to 8 peanuts. My son, who had reacted with anaphylaxis just a year ago... at 1mg... was able to tolerate 4 peanuts with no reaction at all! This, to us, is a miracle and we feel so very blessed to be a part of the PALISADE Trial. 

What does this mean? Right now, my son has another 28 weeks to go... he will be a part of Cohort 1 and continue to dose with 300mg of AR101 daily. We MUST still avoid peanuts and products that "may contain" peanuts... but in the very near future this will change for us. He will live life more freely and with less fear... this is the reason we joined this study... the HOPE that he would one day have more freedom... more normalcy... more LIFE... and so far... it appears to be working!

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