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Siblings Battle Rare Disorder Together

251 views · Published 9 December 2014 · 1:34 · Indexed 26 October 2026

Channel: KUTV 2 News Salt Lake City · 2014 · News & Politics

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(KUTV) Three siblings share more than their books and video games. They all have a rare disease that is attacking their digestive tracts. For Jackson, Boston, and Tyler Frisk, the weekly medical tests, hospital stays and dietary restrictions is just a part of life. The Frisk children all have Eosinophilic Gastrointestinal Disorder. Its a chronic disease in which white blood cells are found in higher amounts in the digestive tract. This condition causes life-threatening food allergies to things like milk and even fruit. Eating the wrong food could be fatal. Between all three kids, weve gone through about 13 surgeries, and had extended stays, said mother Jenny Frisk. We are at the hospital almost at least once a week if not more.Two of the kids now have feeding tubes. Their parents spend much of their day preparing medicine and special formula. And the formula, which has important nutrients, has a price tag of about ,000 a month. Jenny has also pulled her older kids from school and is home schooling them. She admits some days are harder than others. Theyve been through things that most adults havent been through in their life.Jenny remains hopeful that advances in medicine will one day give her children the opportunity to have lives that dont involve feeding tubes and hospital stays. Currently, there is no cure for Eosinophilic Gastrointestinal Disorder. She is hoping to take her children to a hospital in Cincinnati that has specialists that focus on this particular disorder.

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